New treatment, future with Lyme, Under Our Skin, and new symptoms.

As expected, yes, my test was still positive for Lyme. Good news - a bunch of the others things I had, like cucumber tapeworm, didn't come back! The results were much shorter, only two pages, instead of four. One thing that did come back pretty bad that wasn't surprising - bad adrenal (stress gland) function. Bad news - the Lyme is still just as bad.

So, yesterday I started a new round of treatment, which [thankfully for the sake of my remembering dates] happened to be exactly three months to the day after I started my first round. This time it's all drops, instead of a bunch of capsules. Now that I have no problems swallowing anything of any size, I think I'd prefer the capsules. Hopefully this is enough to at least kick it enough so I don't get so sick next time I get slightly stressed.

I was telling my mom the other night that I'm ok with the fact I might have Lyme the rest of my life. I wouldn't mind as long as I have no or VERY few symptoms. It can lurk in my body, it just can torture me. EXCEPT. If that is the case, I don't ever want to have any children. Of course I would still adopt (I plan on doing so either way), but I wouldn't have any biological children. I just wouldn't be able to live with the fact I gave my child Lyme and they are suffering from it. In Under Our Skin, there's the boy who is extremely disabled and has to use a communication device. His mother wasn't very specific about how sick she was before she had him, but it didn't seem like it was enough that she was seeing doctor after doctor to get a diagnosis. If she wasn't that sick, and she gave the Lyme to him that made him as sick as he is....  Anyway. I suppose I don't have to worry about that right now. lol

Speaking of my mom and Under Our Skin, I made her watch it the other night. I think it was very eye opening for her, in many ways. For one, I think it helped her understand what I am going through more as I don't do a good job conveying that. It also made her realize how serious it can get, and helped her understand the politics and controversy.

I watched it with her, and it was the third or fourth time I've watched it, but I always learn and understand more every time I do. If you haven't watched it yet, I highly recommend you do. Yes, it's a little bit long, but so worth it.

You can watch it:
Free with Amazon Prime Instant Video
Free on Hulu
Free on Netflix
More on Demand Options
Rent or Buy on Amazon Instant Video

If you're gonna be stubborn, and not watch it, at least please watch the trailer.

I've been struggling a lot lately with Lyme. Detox from this new round of meds hasn't started yet (and I'm not looking forward to that), but I have been having new symptoms. Not anything big or extremely painful, just stuff I'm not used to dealing with.

Like dizzy spells. Oh man, these scare me so bad, because I'm afraid I'm going to be going down the stairs, holding a kid, or worse, both at the same time when one happens. I've found that unlike the dizzy you get after spinning too much, you can't just stand still and wait for it to go away. So I've been diving for the closest chair, or dropping to floor. When neither are available (floor - when I'm wearing a skirt and there are a bunch of people standing around!), I clutch the nearest person. Thankfully this has not yet gotten awkward! lol

I also started having twitches/tics/jerks, whatever you want to call them. They don't hurt very much (are they supposed to??), but they do tend to make a scene. And they scare my mom, esp after watching about Mandy in Under Our Skin. Sometimes its just my foot or hand twitching, other times my neck/leg/arm/hand/jaw etc jerks.

And also, the nausea, which I've been so lucky to avoid thus far as a symptom, has hit full force. And no, it's not a side affect from a med. It's awful!

Yup, this post is a bunch of rambling. What happened to my old posts that has a purpose, and one topic per post???? Hmm, maybe I should work on that.